The European Society for Organ Transplantation (ESOT) is launching a significant initiative with its "Quality of Life after Liver Transplantation" project. This survey aims to delve deeply into the experiences and needs of those within the liver transplant community, whether they are awaiting transplantation or have undergone the procedure.
Objective: The primary goal is to gather detailed insights about the quality of life before and after liver transplantation. Understanding these aspects directly from the patients and their families will enable ESOT to tailor educational resources and activities more effectively.
Participation: Emphasizing the importance of patient representation, ESOT encourages all members of the liver transplant community to share their experiences through the survey. This inclusive approach ensures that the initiatives developed are truly reflective of the community's needs.
Benefits: By participating, individuals contribute to a broader effort to enhance post-transplant care and long-term health outcomes for liver transplant recipients. The insights gained from this survey will be instrumental in developing targeted support and educational materials.
Workshop: Additionally, an online workshop scheduled for June 3, 2024, at 17:00 CEST, will provide a platform for further engagement and dissemination of the findings and resources developed through this project.
How to participate: The survey is available here (https://www.surveymonkey.com/r/QoLafterLiverTx) and can be completed in multiple languages, including Romanian, ensuring accessibility for a diverse group of participants. The deadline for completion is May 7, 2024.
By contributing to this survey, participants not only aid in improving their own conditions but also help in shaping public health policies aimed at standardizing processes in organ transplantation, thus enhancing the overall efficacy and uniformity of transplant-related procedures.